What is Fragile X Syndrome?

Fragile X syndrome is a genetic condition caused by a mutation (CGG repeat expansion) in the FMR1 gene on the X chromosome. This mutation leads to a lack of production or a reduction of the fragile X mental retardation protein (FMRP), which is essential for normal brain development. It is the most common inherited cause of intellectual disability and autism spectrum disorder. The condition follows an X-linked dominant inheritance pattern, meaning it can affect both males and females, but symptoms are often more severe in males.


Key Features

  • Most common inherited cause of intellectual disability
  • More severe effects in males than in females
  • Can cause learning disabilities, behavioral challenges, and developmental delays
  • Associated with certain physical features

Common Symptoms

  • Delayed speech and language development
  • Intellectual disability ranging from mild to severe
  • Behavioral issues such as anxiety, hyperactivity, and social difficulties
  • Autism spectrum disorder traits
  • Long face, large ears, and flexible joints in some individuals

How to Reduce the Risk

Genetic counseling to understand inheritance patterns and reproductive options

Carrier screening for individuals with a family history of Fragile X syndrome or unexplained intellectual disabilities

Preimplantation Genetic Testing for Monogenic Disorders (PGT-M) during IVF to select embryos without the FMR1 mutation

Prenatal genetic testing for early detection during pregnancy